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I've decided the first note should be on who we are and why I decided to do this.


My name is Paul, my wife's name is Denise and our daughter is Annelise (Anna). We also have another daughter Eva, her husband Justin, and a grandson CJ.


Anna has what is considered an ultra rare genetic condition that has resulted in her, among other things, being significantly developmentally delayed. The condition is not important but if you interested in learning about this ultra rare condition please check out the Champ1 Foundation (champ1foundation.org). A detailed summary of Anna's life story can be found on their website.


Anna does, and will require support and care for the rest of her life, as well as continued medical care and evaluation(s).


For Denise and I, going on 15 years now the primary caregiver role has been myself; Anna just listens and reacts to me better, she always has for some reason.


In about 2 weeks now I will be having a total knee replacement and will be unable to care for Anna at all; everything is going to fall on Denise for a few weeks, minimum.


I’ve realized that how this will effect us could be a learning experience so I have started this blog. It’s called “When Caregiver's Don't Care - How my Knee Replacement Effected the Care of My Disabled Daughter” and it will be about how my being on the care sideline effects Denise and Anna, and how we managed this time. 


It will not be about me and how my recovery is going other than how I transition back into my care role, it will be about how Denise and I “transitioned” our care roles and how Denise and Anna handled it.

Location: Westlake, OH 44145, USA

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